The Velcade Three

The Velcade Three

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We are proud that 68 local constituents have signed an Early Day Motion supporting our campaign for access to Velcade.

Click here to view EDM 1819.

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Myeloma UK provides support and information to all those affected by myeloma.

Article: £25,000 handed over to charities close to our hearts

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We would like to say a big thank you to everyone concerned who, over the past four years have helped us in our campaign to get the drug Velcade to be made available to all Multiple Myeloma sufferers. When we realised that NICE was to deny Velcade to the Myeloma community back in 2006, we were devastated. This was the first new drug to be developed for Myeloma in over a decade and was already in use in America and had proved to be successful in clinical trials in the UK.

The Velcade Three with representives from Manorlands, Airedale Hospital, Myeloma UK and our Consultant from Leeds (Gordon Cook).

On hearing NICE were refusing to fund the treatment we decided we had no option but to pledge to take our fight to the European Court of Human Rights if necessary and we launched an appeal to fund legal costs. Our aim was for all Myeloma sufferers to have access to Velcade, at the point of need after consultation with their consultant.

Along with Myeloma UK and other charities we feel we have been successful in having Velcade put into the medical regime for Multiple Myeloma sufferers.

Three years on from NICE's decision to allow Velcade to be used at first relapse it appears that Myeloma sufferers are being given access to Velcade at the point of need. Also unfortunately, during the past two years our health has deteriorated. We feel it is no longer necessary to continue with this campaign, having achieved what we set out to do.

The Velcade Three handing over cheque to Eric Low (Chief Executive of Myeloma UK) for the sum of £18,000 and Dr Gordon Cook (Board of Directors for Myeloma UK and also Consultant at St James Hospital Leeds).

As a result of our campaign we raised over £25,000 which we handed over to three charities close to our hearts. £18,000 has been handed over to Myeloma UK (The only Myeloma charity in the country), £2,000 to our local Sue Ryder Hospice Manorlands and £5,000 to the haematology and oncology day unit at Airedale General, our local hospital.

Once again, a big thank you to everyone who has supported our campaign.

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